Welcome back to Taylor Talks!
Today, my family and I walked a mile to support CMT Awareness.
First, I’ll tell you a little bit about CMT. I am not an expert on the disease, but this is merely what I know and understand about it. To find out more information, consult a doctor or reliable medical website. Charcot Marie Tooth is a neurological disease, which means that it affects the body’s nervous system. A person with CMT is constantly in pain, may not be able to feel their extremities at times (legs, feet, arms, hands), and faces a constant uphill battle with the progression of the disease.
My Godfather’s daughter, who is in her thirties and a mother of two, was diagnosed with CMT just a few months ago. Their family lives a little under two hours away from us, and we knew that they were planning a special walk for CMT Awareness today. My mom talked to my Godfather and planned for us to go down this morning as a surprise for his daughter. It turned out to be a great surprise, and we had a great time walking with the whole family… we had blue balloons and blue ribbons pinned on our shirts (blue is the color for CMT Awareness). It was a great day, and everyone got really into the cause. There is no cure for CMT right now, but with support, I’m sure that a cure will be found someday soon.
To donate toward finding a cure for CMT, and to learn more, visit hnf.org.
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My family has been doing foster care since I was three years old. I'm the only biological child in my family, though I now have five permanent siblings. Having nineteen siblings over the course of my lifetime has been an incredible experience, and I'm hoping that by sharing some of the ups and downs of being the only bio kid in a foster family, other foster families or people looking into doing foster care will be able to learn a bit of what life can be like. I also like to share what life is like on my journey to becoming a published author, as well as where my schooling and career choice are taking me.